Overview: 

Project Description: NORC is supporting the Michael J. Fox Foundation for Parkinson’s Research in its recruitment and community engagement efforts for the Black and African American Connections to Parkinson’s Disease (BLAAC PD) study, funded by Aligning Science Across Parkinson’s. Part of the Global Parkinson’s Genetics Program (GP2), the BLAAC PD program is recruiting Black and African American adults with and without Parkinson’s disease across the United States to transform the understanding of Parkinson’s genetics. NORC supports this work by providing cross-site training/technical assistance (TTA) and facilitating co-learning forums to support recruitment efforts and promote community-engaged research across six BLAAC PD study sites. As part of this work, NORC has also created a roadmap of best practices intended to mutually and iteratively document best practices for recruitment into the BLAAC PD study. The roadmap synthesizes and shares a collection of best recruitment and engagement practices from the literature, subject matter experts, and community experience, to produce a living document that can evolve during the course of the BLAAC PD project.